This page offers a list of Patient Information websites. When a link is
clicked, that site will open in a new window on top of The PA Page.com.
Information about these web sites came from a variety of sources. Please
tell us if you have a negative
experience or find a nonfunctional link.
Have you found web sites dealing with health issues that
may of interest to patients? If so, please consider submitting
the address for consideration.
A related section in this site is our 3
Minute Heath Briefs, a collection of patient information sheets on
health related topics. Also related is our page on Patient
Assistance for Prescription Medications.
We are also looking for web site Reviewers,
with a ready-made list of sites to visit and determine if they should
be added here.
Information found here should be discussed with your health care provider before it is used.
Categories
of Websites
Aging
Air Transportation for Patients
Alternative/Herbal Medicine
Alzheimer Disease
Burns
Cancer/Oncology
Chat Rooms for Information and Support
Clinical Trials
Death & Dying
Diet / Food
Diabetes
Dermatology (Skin Problems)
Family Medicine-General topics
Fitness
Heart
Laboratory Tests
Medicines
Narcolepsy
Obesity
Osteoporosis
Parenting
For Seniors
Sex
Sports
Aging
National Institutes of
Aging
Air
Transportation for Patients
— Patient
Assistance Resources, National Institute of Neurological Disorders and
Stroke, at NIH. Provides the National Patient Air Transportation Helpline,
and four charitable Air Transport services. 11/26/01, jk
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Alternative/Herbal
Medicine
— American Botanical
Council
—Contents of Herbal
Information: Botanical Booklet Series | Commission E Monographs
| Common Herbs | Ginseng Evaluation Program | Herbal Medicine | HerbalGram
| HerbClip | Herb Reference Guide | The ABC Clinical Guide to Herbs.
—Contents of Educational
Resources: Continuing Education | Terminology | Ethnobotanical
Tours | Internships | Educational Links. Reviewed 11/20/01, jk
— Dietary
Supplements, Center for Food Safety and Applied Nutrition, Food and
Drug Administration . Extensive, free email notification list. On the
day of our review, the site had information about the dangers of the dietary
supplement LipoKinetix, and Dietary Supplements Claiming to Prevent
or Treat Anthrax. 11/23/01, jk
— Herb
Research Foundation Contents include "a specialty research library
containing more than 300,000 scientific articles on thousands of herbs,
education programs, botanical literature research, publications, herb
safety reviews, and Herb Information Packets." Among their interesting
articles at the time of this review, one that stood out: Medical
supplements may be treated as medical expenses 11/22/01,
jk
— National
Center for Complementary and Alternative Medicine
A section of the Combined Health Information Database (CHID). NCCAM maintains
an information clearinghouse to collect, develop, and disseminate information
to the public on Complementary Alternative Medicine practices and on the
NCCAM. The AM Subfile of CHID includes references to fact sheets, textbooks,
journals and journal articles, newsletters and newsletter articles, audiovisuals,
directories, manuals, brochures and pamphlets, bibliographies, monographs,
and reports. 11/20/01, jk
— Food and Drug Interactions,
National Consumers League . Their ". . . mission is to identify,
protect, represent, and advance the economic and social interests of consumers
and workers. The National Consumers League is a private, nonprofit advocacy
group representing consumers . . . We are the nation's oldest consumer
organization." They offer a number of interesting patient education
sites. A good example is "Aspirin
and Coronary Artery Disease" 11/22/01, jk
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Alzheimer Disease
—Alzheimer
Canada This aesthetically pleasing site represents this national Society
Site. It features a great deal of basic information. In Common Questions,
the first question is: "I believe my wife has Alzheimer Disease.
How can I get her to see her doctor?" Also, the Physician Section
encourages you to tell your doctor how to find it.1/02, jk
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Burns
Cool The Burn
An educational website for children on burn injuries.
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of list
Cancer/Oncology
See also Clinical Trials below.
American Cancer Society
(Cancer.org)
Local assistance and support services. Catalog of cancer related clothing,
wig information.
Cancercare.org
Online support groups, virtual workshops, teleconferences. Links to cancer0specific
sites, financial aid, finding and understanding clinical trials.
CancerNet (cancernet.nci.hih.gov)
The National Cancer Institute provides information on clinical trials
and treatment options. (Also listed below in Clinical Trials.)
Oncology.com
News and information for consumers, their support circle, and health care
providers. Can search by cancer type to find disease summary and treatment
options.
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of list
Chat Rooms for Information and Support
Many of these sites require registration to participate in a discussion.
Unfortunately, we have to say it: be careful in chat rooms. It is not
unusual to find phony credentials, bad advice,and those trying to connect
names with phone numbers and addresses for illegal purposes.
Chronic
Pain
Survivors
of Abuse
Parenting Teenagers
iVilliage.com, The Women's Network.
Parenting Toddlers.
Momsonline.com. Click on Mom to Mom.
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of list
Clinical
Trials
CancerNet (cancernet.nci.hih.gov)
The National Cancer Institute provides information on clinical trials
and treatment options. (Also listed above in Cancer/Oncology.)
Centerwatch.com
Listings of corporate funded clinical trials.
Also offers active matching of patients for Clinical
Trials Matching Service.
Also offers reports focused on specific diseases, which include information
about clinical trials results, drugs in development, and current clinical
studies. Click
here.
Clinicaltrials.gov
Listings of clinical trials for many forms of cancer and hundreds of other
diseases. Mostly government funded-poor representation by pharmaceutical
firms. Can request periodic email notifications of trials for region and
subject of your choice.
Emergingmed.com
Listings of corporate funded clinical trials.
Phrma.org
The Pharmaceutical Research and Manufacturers of America. Said to be the
most extensive listings of industry/corporate funded clinical trials (Yahoo
Internet Life, April 2001, page 116).
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of list
Death & Dying
Americans for Better
Care of the
Dying "Founded in 1997, Americans
for Better Care of the Dying (ABCD) is an IRS Section 501(c)(3), Washington,
DC based organization dedicated the ensuring that all Americans can count
on good end of life care." 1/01,
jk
Supportive
Care of the Dying "Supportive Care of the Dying was founded in
1994 when Catholic health care systems in Oregon met to discuss appropriate
responses to the public outcry for legalized physician-assisted suicide."
1/02, jk
The
World Federation of Right To Die Societies ". . . represents
nearly all the organizations internationally which are fighting for a
person's right to die when terminally ill. " 1/01, jk
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Diabetes
American Diabetes Association
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of list
Diets / Food
American Dietetic Association
This site is cheerful, and arranged carefully. Contents include Lifestyle
Advice, Dieting, Books, Careers in Dietetics, and a simple way to search
for a dietitian. Much more can be found, including an extensive summary
of their Complete Food & Nutrition Guide. jk, 1/02
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Dermatology (Skin Problems)
The
American Academy of Dermatology
National Skin Health Program, Find a Dermatologist, more...
The Electronic Textbook of Dermatology An amazing web text book, well researched and documented. Many pictures, written by Dermatologists. Intended for medical providers, but could be very useful for the average person wanting to know more about warts, skin cancer, baldness, etc.
Healthology.com
The Skin Health section offers information about everything from laser
treatments to the use of moisturizers. Webcasts are available with dermatologists
discussing prevention and treatment.
Dermatological
Health Center
Research and Treatment news, from vitiligo to psoriasis. Check out the
Medilibray. Several helpful links.
Prevention.com/healing/skincare
General skin care, prevention.
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of list
Family
Medicine-General topics
familydoctor.org/
"Health information for the whole family, from the American Academy
of Family Physicians."
Fitness
Collage
Video According to the Detroit Free Press, (10-7-01). this site offers
"the widest selection of exercise tapes you are likely to find anywhere."
Five categories: aerobics, muscle toning, aerobics and toning, stretching,
and specialty workouts (pregnancy, kids, and so on).
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Heart
American
Heart Association
National
Heart, Lung, and Blood Institute
Includes information about Heart, Vascular, Lung, and Blood Diseases,
as well as Sleep Disorders.
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of list
Laboratory Testing
Lab Tests
Online, Offers information about individual tests, understanding test
results, and the risks of not testing for individual diseases.
Medicines
MedlinePlus,
"A guide to more than 9,000 prescription and over-the-counter medications
provided by the United States Pharmacopoeia (USP) in the USP DI® Advice
for the Patient®." 2/02, jk)
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Narcolepsy
Narcolepsy &
Sleep Disorders, Free online news about narcolepsy for patients, physicians,
and researchers
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Obesity
Aim For a Healthy Weight
Web page, by the National Heart, Lung, and Blood Institute, National
Institutes of Health. Offers simple ordering of free material by mail.
Includes information on diet, activity, behavior, and surgery.
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of list
Osteoporosis
American Academy of Orthopedic
Surgeons
American
Geriatric Society
American
Society of Bone and Mineral Research
The
Foundation for Osteoporosis Research and Education
National
Institutes of Health, Osteoporosis and Related Bone Diseases, National
Research Center
The
National Osteoporosis Foundation
OBGYN.net:
The Universe of Women's' Health
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of list
Parenting
(The Chat Rooms section above also have Parenting
subjects.)
ParentCenter
()
Discusses the common problems of 2 to 8 year old children at home, play,
and school. Includes bulletin boards where other parents share their experiences.
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of list
For Seniors (See also Aging
above)
Benefits CheckUp.
Fill out a simple questionnaire, and the site tells you which of a thousand
state and federal programs you are eligible for. Sponsored by the National
Council on Aging, New York Life, Merck Company Foundation, Lucent Technologies,
and AOL/Time Warner.
Exercise:
A guide from the National Institutes on Aging.
An amazing online book. Chapters include "What Can Exercise do for
Me, Is It Safe for me to Exercise? What Should I Eat, and Target Heartrate".
Also provides an excellent list
of nonprofit organizations with web sites on exercise for seniors
American
Geriatric Society
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Sex
Sex, Etc. Written
for teens by teens. Since 1994, the Network annually recruits a new editorial
board of high school students from New Jersey, New York and Philadelphia.
From the the Network for Family Life Education. 1/02, jk
There are many legitimate sites that discuss sexual issues. An easy way
to see what is available is to go to any search engine (altavista.com,
google.com, and many others) and enter sex as the search word. Surprisingly,
most of the sites will not be pornographic, but informational. jk
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of list
Sports
National
Association of Governor's Councils on Physical Fitness and Sports
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Unfortunately, we can not be responsible for
the accuracy of information or behavior of the owners of these sites.
Please use at your own risk, and use discretion when giving personal information.
Notice: These materials cannot provide you with health or medical advice: only your health care provider can do that. The information contained in this web site is not a substitute for medical advice. Please consult your health care provider before beginning any health related program.
